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What is Congenital Adrenal Hyperplasia (CAH)?
CAH is a genetic defect of the adrenal glands. A person with CAH will not be able to produce several
vital hormones known as corticosteriods. CAH is treated with hormone replacement, replacing one or both
of the hormones missing, generally with Cortef and Florinef. Living with CAH requires extra attention to
common illnesses and stress inducing situations (injury, exercise, etc.) and very good communication
with your Endocrinologist. While this site is intended to provide information, support and education for
people and families with CAH, your Endocrinologist must always be your primary source for medical
information, and should always be consulted regarding any medical questions. |
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Medical Sites
In the Medical Sites section you will find links to web sites and pages with information on the medical
aspects of CAH, including technical information, medicine, screening, DNA testing, etc. Many of the
links are to sites and pages for medical professional so may be hard to understand. Please refer to the
CAH Glossary for definitions of some of the more common terms. |
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People and Support Groups
Communicating with other people or families with CAH is an essential part of living with Congenital
Adrenal Hyperplasia. Through the People and Support Groups page you will find links to others who are
also dealing with the condition, either themselves or a loved one. The Message Boards on this site are
also an indispensable tool in networking with others around the globe who have been where you are, or
will be. |
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Our Logo
You may have noticed that the picture on our logo changes. These are pictures submitted by those who use
the message board, of themselves or their family. Each picture has someone with CAH. |
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Message Boards
Our Message Boards are the heart of our efforts to facilitate the Education and Support of people
and families with CAH. We utilize a completely customized message board script, written
specifically for the unique requirement of this site, to offer the easiest communication between
those across the globe who are interested in sharing or learning about Congenital Adrenal
Hyperplasia.
Board stats... |
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Frequently Asked Questions
Our Frequently Asked Questions were gathered from the 40,000+ messages in the Main Message Board
Archives. The questions are divided into sections, based on who best could answer that question.
Some sections provide links to threads within the archives that contain messages that answer the
question, some have answers we have researched and gathered the data for. Two sections will
answers provided by noted Endocrinologists who have graciously agreed to supply answers. Currently
the FAQ section has not been completed. We will be adding answers as time goes one, please check
back for updates. |
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CAH Glossary
Eventually you'll find yourself wading through terms you will not understand. The CAH Glossary is
provided as a quick way for you to familiarize yourself with the medical terminology pertaining to
Congenital Adrenal Hyperplasia. |
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