My daughter, Jessica, is about to be 9-months old. We (and the doctors) actually thought that she was a boy at birth. It wasn't until a week after we brought her home that her new-born screening came back with disturbing results. Luckily, the ped that had seen her at birth (our regular one was on vaction at the time) had ordered testing to be sure that she was a boy (they couldn't find her testicles which they later found out she didn't have of course). And by the time the newborn screening came back, he was able to sit down with us and say for sure that we had a girl. For us the first three months of her life were nothing but hospitals and doctors. Jessica is also a 21 hydrox-salt waisting. I haven't quite learned the names of the tests they run. She has been so dehydrated and stuck so many times because of her UTIs that they would run out of places to draw blood. However, she has out grown that and the last time they got it in one stick. So far for me the uneasy part has been seeing my sister-in-law decorate her nursery for the baby girl she having. I sometimes get an uneasy feeling in my stomach envying the pink and white frills that I didn't get to plan. The feeling in my stomach matches the lump in my thoat that I got as I packed away the baby boy clothes. Although things could have been a lot worse, its still been hard. (More so for me than my husband, since I planned the nursury and shopped with my mother for the clothes.) I sometimes go a little nuts these days buying pink clothes and head-bands. I explain it to my husband by saying I want to be able to look back and tell her I wanted her as much as a girl as we had wanted the boy we thought we were going to get and that we had for one week. A few weeks ago, I had to take Jessica to another local ped for an ear infection. He told me he has an 18 year old patient with CAH. According to him, CAH is much easier the older the child gets. The only problems his patient has encountered is developing asthma in her adolescence. The steroids for the CAH treatment and the asthma treatment was a fine balance.