Hi Jennifer- I think many of us have our horror stories of diagnosis. The parents of girls have the feelings of that go along with ambiguous genitalia. The parents of boys (many , anyway) have had to see our children have a crisis before diagnosis. Rest assured, you get distanced from that. Blood tests were the worst part for us. It wasn't until we got the EMLA cream to numb the site before the stick did they get better. He is still a hard guy to find his veins, but at least he does not fear it like he did. BTW.....I think we all go nuts buying pink for the girls. I HATED it when my daughter(no cah) was mistaken for a boy. ;-) Keep us updated and I hope you will find answers as you need them from the folks around here.