He was admitted to the hospital at the age of 6wks as a "failure to thrive". The resident who was assigned to him in pediatrics had just finished reading about babies with CAH in his studies, he listened to me when I told how my son would not vomit when I breast fed him, only when he was given formula, even if it was soy-formula. The resident kept this in mind when he checked my son's electrolyte results that showed his sodium dangerously low & potasium dangerously high. He badgered & begged his superiors to test for CAH. They finally began taking blood for the tests. I still don't know which tests they ran to diagnose. All I do know is that when my son re-gained enough weight, they allowed me to take him home and sent with us a case of high calorie formula. A few days later the resident called me on the phone, told me they had a diagnosis, and to come get his medicine RIGHT AWAY. He was put on cortisone acetate and florinef acetate (both pills) & set up with a visit for a few days later. My son never had more than one or two residents look at him at the same time. I can only imagine how scary that must have been for you & your parents. Reading the message boards, I'm not sure things are a whole lot better for us now! There are still many of us who have to educate our medical professionals - especially in the ER. We do, however seem to have more Endocrinologists available - atleast in some regions.