I have heard many adults on the board be unhappy once they went to see an adult Endo....they just did not know what to do??? It is to our kids benefit that you get the answers you need so that we, too, can see progress. While I understand the reason for the study to improve height in CAH kids, I would much rather see other things done.As the mother of a son.....height does matter, but I would love to see the quality of his treatment improve.