I would also like to thank anyone who has suffered through testing for CAH. I truely believe that my 4yr old son would not be as controlled as he is today if it weren't for all the knowledge gained by others before him. I also have a second cousine who is about 30 now. Although I don't really know her I know of her from my mother and have also had conversations with her mother, shortly after my son was diagnosed. I was amazed to find how much more I had known in just a few weeks time compared to her mother. It was also amazing to me to hear how she had been treated as a child and all the problems she has now as a result. I can only pray that my son will never experience that. About 1yr ago our endo asked if we would consider putting our son into a study for another medication, apparently being used in Europe. My husband and I refused but for different reasons than eachother. My husband flat out refuse to allow our son to be used as a ginnie pig. I on the other hand had reservations because of his age amoung others. But I really believe if he were older that I would have felt differently, for this particular study anyhow. If it were another study I may have felt very differently. But I feel that each of us has a responsibility to help our future generations. This is the second time this has been seen in my family, it did not skip a generation. How do I know that my son will not see this in a child or grand child of his. I believe that we owe it to those future children to learn all we can. Does that mean put my son in danger, of course not! But do all I can for him and his children. I have also always asked my endo what my son will do for a doctor when he gets older. Fortunaly for us we live within a commutable distance to Boston, Mass. We have some of the best doctors in the World. My son is treated at Children's hospital Boston. Our endo has informed us that Children's will never turn him away and will always be willing to see him because he has been there from the start. They have also informed me that there is another hospital in Boston, I believe Woman and Brighams, that is planning a unit for Adult CAH patients, and that my son may have that available to him as well. Thanks again for sharing your very personal feelings and for all you have done for all our children.