Just be aware that when a CAH person turns 18-21 the knowledge and care decreases. your problem isnt gone but the knowledge is. Idont know what we can do to correct this.No studies are being done on the long term effects.I know I fuss but It seems to fall on deaf doctors.I think t is hard for them to face that the meds they rely on to heal, are slowly destroying their patients.How many of you know of a doctor that tell you your medicine cant be causing your problems? I am really Glad that many of you parents arent ashamed of your childs condition and are taking an active roll in the treatments.Dont settle for an answer of " you will have to just live with it,that's all I can do " ect. When you know in your hearts that isn't good enough. Susan thanks for understanding .I think we have some common ground.