Hi, my name is Holly Courtois and I have a son who was diagnosed at one month of age with the saltwasting form of CAH. I'ts been ten years since then and just recently I have found things out about the medicine he takes and it really is disheartening. I wish I would have put more effort early on in to researching CAH. My concern is that my son has been gaining weight alot, at age 10 he weighs 110lbs. and is 55in. Any one who may also feel concerned about weight gain please reply. Also, if anyone could tell me about how their child was diagnosed with this form of CAH it would be appreciated. The genetic testing in my sons case is what bothers me also, because they say that it is genetic and my husband and I were found to have no mutations and my son only had one detected. In everything I've read and understood, if these tests are 95% accurate, then something just does not seem right. I have alot more to this story, and if anyone is able to help me out with personal info. or medical info. please respond.