Dear Rose, I must respond to your concerns that your daughter may have CAH. Persist if you know something is not right. Your experience seems unfortunately close to ours. Think back to the first days and months of your daughter's birth and record them. My daughter was born in the mid 80's. While more is known today about CAH, attitudes still need to progress to help people understand this disorder and for doctors to diagnose and treat this disorder. At birth my daughter had an enlarged clitoris but I was told that this should be of no concern because well.... this can just happen with all the extra hormones in a woman’s body during labour(this was the explanation). My 8lb 10 oz baby girl also had the most amazing golden-olive complexion - I guess you could say she looked well-tanned for a newborn. I counted 10 finger and 10 toes and thanked God for a normal child. Within 24 hrs she was placed in the neo-natal intensive care unit because 3 times she appeared to stop breathing. Fearing meningitis, she was placed on antibiotics. Tests came back negative for meningitis but no CAH tests were done. She was released after 1 wk. For the next 3 years we went through one episode after another. These included -a simple case of cradle cap and rash became a major rash and infection overnight. -a canker sore in the mouth in the morning was a major inflammation by dinner time. - a cold that wouldn’t go away. - a public health nurse and doctor who couldn’t find her vaginal opening - continued enlargement of the clitoris, abnormal development of urethra and difficulty in urinating. I always knew when she wet because she immediately cried. - awful constipation - sweaty smell on her brow ( she sweated a lot) -simple colds turned into major colds or into bronchitis - rapid growth and boundless energy -difficulty slowing down enough at bedtime to fall asleep, dark circles under the eyes -short sleep patterns (she woke up nearly 3 - 4 times a night wide eyed awake) -peach fuzz-like hair growth in the pubic area at 2 yrs I used to joke that she was faster than a speeding bullet and could leap tall buildings in a single bound. Please don’t get me wrong. I knew this was no laughing matter and consulted my family doctor and numerous pediatricians including the head pediatrician at the hospital. Living in a small city, I wonder if they forewarned each other of me. Testing up to this point included 24 hr urine collection, genetic testing, ultrasound and various blood tests but no CAH suppression test. We were repeatedly told that everything was normal and to stop worrying. Thank goodness I persisted. In a round about way, I had my daughter referred to an endo. My family doctor was furious. We stopped going to him! Finally, on the right track, the endo had an ACTH stimulation test administered. When the test results came back, his response was, “ Mother was certainly right.” It was a classic case of non salt-losing CAH. Has your daughter had an ACTH stimulation test done? Results are considered reliable. Any 24 hour urine collection done on my daughter has never indicated abnormalities. This is what the doctors initially used and kept saying my daughter had no problems. We finally had her diagnosed with the ACTH stimulation test. Don’t give up if you know something is not right! Peg