I knew there was a link between CAH and the headaches and your story of you and your brother has given me more confirmation that I was on track. I hope you don't mind, but I'm planning on mentioning that I "met" people (I won't say names) that also experience headaches from this condition when there were changes in their levels... I know... I know, he's going to ask how I know the headaches were not attributable to other problems... a typical answer, but maybe he'll start taking me a little more seriously and double check his numbers before he ages yet again. Rickie's headaches really took notice when he was att summer "camp" when he was 7 and I'd have to leave work once a week to pick him up and bring him back to work with me. I remember a few times when the director would roll his eyes as I walked in the door and say they just gave him his meds and his headache was gone, like Rickie had been making up the headache. Since then I have had a policy of asking the school nurse that if he comes complaining of headaches to call me and possibly give him his meds a little early, unless it is a virus that we know is comming on. If you don't mind me asking, did they change your medication from Hydrocortone to another steroid when you were considered grown? Since Rickie is already 14.5 he knows he'll stop growing an inch or two short of where he should (but as they said he was shooting for 6-2 theres plenty of room for error ;) He is worried about a change to his meds though *smile* silly boy huh?