Hi Donna, I have a 10 mo. old boy with the aalt wasting form. I remember so clearly how I felt when we found out about his condition. It was like all the air had been sucked out of my body. Between my awful c-section and his diagnosis we spent his first few weeks in the hospital. I also remember reading messages on this board and people said it would get easier. THEY ARE RIGHT. I sometimes still have fear and anxiety about his health, but in general he is such a joy in my life I can't imagine him any other way. Here is my experience regarding your questions. 1) My son has been fairly healthy. We have not had him in the hospital since his was first diagnosed. He has had some coughs and colds but I don't think any more than other babies and he has been such a trooper he fends them off better than I do. He was in daycare for a few months and he did pick up all the colds going through there (it wa s small center, only 4 infants). But I think some kids are like that, some aren't. I agree with some of the other parents on this board. It seems some kids get sick more often, some kids get sicker, and some don't, regardless of CAH status. 2) My son has received all his immunizations. We did make sure that he received the "dead" virus whenever possible (I think it was IPV instead of OPV for polio). We did give him tylenol (the amt was calculated by his dr.) before the shot to keep down any fever. There was no need to increase his cortef. 3) I'm not sure what the norm is for the hydrocortisone. My son takes Cortef (liquid suspension) three times a day - with the biggest dose in the p.m. Some of the recent messages on this board have discussed the efficacy of the liquid suspension. My understanding was that the pills can be harder to give if the doses are smaller (e.g. 1/4 of a pill can be tricky). We have been really happy with his levels. 4) My son has never had a 24 hour 17OHP test. I have heard of the 24 hour urine. His first endo said this was an "older" test and not done anymore. (From what I have read on this board that is not accurate). His new endo has referred to it and she has said we will do it if we see a need (My impression from her is that it is more accurate because it looks at the levels over a longer period of time). . Hope this helps - I know others will have other opinions and experiences- this has been ours. Hang in there. It does get easier. - Chris