Hi Donna, Welcome to our world! Even though it's scary at first it's not all that bad to dea with. There are TONS of other things worse than what we are dealing with. Be EXTREMELY grateful that your son was diagnosed. I have two 4 year old boys (1 of them will be 5 on 5/30 - both non CAH) and a 15 month old baby girl with salt wasting CAH. Both of my boys boys have had ear infections, colds, flus, etc. (Including this past winter!) My daughter had her 1st illnes just a couple of weeks ago (scary, but dealable) With the exception of her diagnosis and surgery (Clitoral reduction, she was originally diagnosed as ambigious genitalia) We have not yet made 1 (KNOCK ON WOOD) trip to the hospital. Make sure that you are comfortable with your endo, as he/she plays an extremely important role in your life now. AS fas as the meds, they are ALWAYS based on blood levels. My daughter gets 2 cc's 6:00 am, 2 cc's 2:00 pm and 3 cc's at bedtime. She also takes one florinef pill in the morning (we dilute it in a ayringe) and 1 florinef in the evening. Hope some of this helps. This message board is an extremely useful tool! Feel free to email me anytime. Have you checked into the MAGIC foundation? Good info there too....Good luck-Our prayers are with you!