Hi Donna! Welcome to the "fraternity" as my husband calls it. However devestating his condition seems (it did to me initially), I am sure your son will grow into a complete joy. When my son, now age 5 months, was diagnosed, at nine days, I had the same concerns. I can relate to the respondent that said she felt as though the air had been sucked out of her when she heard of the diagnosis. I, too, felt the same way. I felt that we had to deal with my two year old, non CAH daughter, Thomas, our newborn, and his illness. It has gotten easier, although there are anxious moments. Thomas has been hospitalized in December, '98, January, February, and March. He first ran a fever, and has been running a low grade one, on and off, since then. He also has hydronephrosis of both kidneys, which is a concern, since a UTI could cause permanent damage to both kidneys, and he has no back up. It has been a roller coaster, but, these ladies on the board are very helpful, and very sharing, of their ideas, experiences, and are very kind. It was a lifesaver to find this site. Please feel free to contact me. Thomas is on Cortef, 3 times daily, .6 ml (no larger dose in the evening, though). I think he has adjusted well. We give him his last medications after he is sleeping, and he takes them without a fuss. As far as your other questions; I can't help you there. Thomas has just had another test today that I have never heard of, since the first test was sent to a lab which returned normative ranges for adults, not children. (Somthing to make sure your endo looks at). Take care, and love your son; he is very special.