happy to found others
5/17/99 11:10 PM
I never knew that others were out there. I was told of my disease (cah) at the age of 15. I'm a 33 year old famale with non classical non saltwasting. I feel very happy. I've never known anyone with my disease. I was on cortizone in high school and went off. It wasn't an issue to me since the side effects were so bad. Two years ago the process starting all over again when I decided to have a baby. No-one believed I had it and I have since been DNA typed and retested. I had a boy and therefore thought I didn't need to worry. After getting my computer I started to research and realized I need to get him tested. I have late onset and I would hate for him to have some of the problems I have had. The DNA on my husband was good he is not a carrier. I know that next time I try to have a baby I must get on cortizone first. My levels did rise during the last preg. I was told since it was a boy it didn't matter wether I took the cort. or not. I now wonder do I need to get him tested? Is there something they could do now. I hate the weight gain and leg cramps from the cortizone. Is there more adults out there? I would like to hook up with some females with my disease. Males are good too, but I have some questions about myself that I feel only women can or could answer. I have gone through alot due to this disease. I still have some hang-ups about my voice and facial hair. I have a weight problem and have a belief that some of it is due to my more masculine build. I would love to chat with someone who knows how I feel. Is it really important that I take cortizone? does anyone else use spironolactone for facial hair? I know I have asked many questions for myself and my son. Feel free to email me at sndc99@earthlink.net thank you.
susan
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