Hi Susan, welcome to the board. I'm sorry your first experience was a negative one. Keep on trying, it's really a great board and an excellent resource. You do have to keep in mind that most of the people on this board are PARENTS of children with this disorder, not actually like you. (As I'm sure you know, parents can become very protective of their kids when someone makes an incorrect statement, so don't be offended by whoever it was that replied to you!) Have you checked out some of the links on this board? THEY ARE EXCELLENT!!! MAGIC is a wonderful organization. If you've read all of the messages you'll see one from Cathy Kushner (sp?) from MAGIC who is attempting to start another board for adults with CAH. I personally like to see what other parents are going through but I also appreciate hearing from an adult like yourself who has lived with this life long. I'm sure that we can all learn from each other's exprience so I hope they don't start a second one. Regarding having your son tested, from all that I've read and heard there is NO WAY for a child to have this disorder unless both of the parents are carriers. From what my endo told me at the very beginning, if I myself were to have CAH the odds of me having a child with CAH were extremely low. Hope this helps! Feel free to email me any time! Best of Luck!