Hi Mary! We have a soon to be 5 year old daughter with CAH who was 5 weeks premature after a very long a difficult pregnancy. We put her med alert bracelet on her when she was about 2 months old and she has never taken it off. It is very important for them to have a Med Alert Bracelet. These kids look normal in every way and this is the only way that the are identified as having a problem. The Med Alert # is 800-432-5378 and they are great. Also if you want more info. on CAH you can contact the MAGIC Foundation at 800-3MAGIC3. Good Luck, if there is anything else I can be of help with feel free to e-mail me. Angela