Hello! My husband and I are investigating forming a nonprofit CAH support group based in Houston, Texas to support those involved with with all aspects of CAH. This is a big undertaking on our part, but we would like to become an organized, nonprofit group, with an identity that can accomplish support for parents and those with CAH, lobby for issues directly affecting CAH, such as keeping certain medications on the market, having newborn CAH screening in all states, and basically become a collective wealth of information, so those of us out there can know we are not alone, and get our questions answered. I am compiling an email list of those that have signed in to some of the guestbooks; so, if you receive an email from me in the future regarding this subject, please don't delete it. I have been contacting different persons, and have already found support for this concept. If this is something you would support and could use, please email me, with your email address, for my list. If you absolutely do not want anything to do with it, please email me as well. I think a support group would be invaluable to us, and, hopefully, I am not the only one who thinks so! Please email me with any ideas you may have (we have plenty, but brainstorming is well worth the effort). I will catalog your ideas, and keep you aprised of the progress I am making on this message board. Thank you.