Wow, this was a surprise. We live in MN and have never heard of this org. I wonder if it is still functioning? We have been to two endos (both pretty well informed I think) and neither of them mentioned this org. Also, we were at Children's Hosp. and were given quite a bit of info on support groups and this one was never mentioned. Our new endo spends one day a week at the U of MN with a group of other ped endos. I think they share info/resource each other but I am not sure if it is exclusively re: CAH or if CAH is one of many topics. Could this group be a physician Assoc.?