I have questions for people willing to listen!
6/23/99 12:41 PM
Being diagnosed with my form of CAH (3 Beta HSD deficiency) was a 4 year task within itself, and I haven't been able to find anyone who has this same form, to ask questions. So if anyone out there does have this form, I would appreciate a response (or if anyone knows someone who has this form). There are issues concerning a diagnostic change in how 3 Beta HSD has been diagnosed in the past and there are articles being published saying that children diagnosed with this, should contact their endo and start a reevaluation process. THANK YOU VERY MUCH!.. God Bless!
Alynn
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