Re: my daughter
7/16/99 5:36 AM
Congratulations on the birth of your daughter. Reading your message put me right back to the day that my daughter was born (3yrs ago). I know what you're going through and like the others have said, this disorder is completely manageable and in no way do you have to feel that she will lack in any of the dreams that you have for her. My advice is to talk with an endo right away. When my daughter was born, I was not in a high risk hospital and my treatment there was not pleasant. I remember feeling like everyone thought that I had a "freak" for a child and I was so scared for both of our futures, that all I did was cry. The pediatrician that was called in told me a bit about the disorder but he truly did not know enough about it himself, so I was left with more questions and uncertainty (he actually sent us home without getting proper diagnosis). It was not until I met her endo when she was 7 days old that I truly felt better. He explained that although there is no cure, she will live a happy normal life with proper care. He was the first person who made me feel that she was a beautiful baby girl for whom I should not feel sorry for, but be thankful that the disorder is treatable. I know that it is so overwhelming now, first dealing with the birth of a new baby and then dealing with all of the uncertaintly of what lies ahead. The two drugs that were probably mentioned to you were hydrocortozone and florinef. The cortizione is given 3 times a day and the florinef tablet is given once or twice a day (depending on the dose). Give it some time, everything will fall into place. Not too long from now you'll become an expert on the disorder and be giving her her meds as easily as you do the rest of your routine. My daugter is 3yrs old, attends daycare and the only way that you can tell that there is anything wrong with her is that she wears a medic alert bracelet. I guess what I'm trying to say is that after you become more experienced with this, you'll see that in fact you have a wonderful healthy little girl. Take care and do try and enjoy the birth of your daughter and remember that she has a deficiency not a disease (that helped me). I live in Ontario, Canada. I'm not sure where you live but if you have any questions regarding health care in Canada I'd be happy to help. God bless, my thoughts are with you.
Angela
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