I wanted to respond to your husband's desire not to tell your daughter about the surgeries she had. I know there will be many different opinions on this topic, but I wanted to share my experience with you. Some things happened during my early childhood (not CAH related) that my parents decided to keep from me. Without going into alot of details, I alwsys knew something wasn't right with the way they told our family history stories. While in college I began to put things together and it was devestating. I really would encourage parents to be honest with their children, just gear the depth of responses to the child's maturity level. I feel like that being open with information shows the most respect to a " little person". I hope you don't take this as "interfering" in anyway. I just wanted to share my experiences.