Lori & Jim, I'm sorry that you have had to experience such confussion. I personally would suggest that your daughter be retested. I would also seek a second opinion from a doctor outside the hospital/clinic that you are currently dealing with. My son is 4 and was diagnosed at birth (4 days old), before he ever got sick. Because the test was done at 24hrs old they redid the test because it was possible that it was a false positive. But as I understand it that possibility was only because the test was done so early in life. If you daughter wasn't diagnosed until 2yrs old then I would assume that the test was done incorrectly or that she has it but in mild form. It is my understanding that our children will always need to remain on their meds. I can tell you that I also have a second cousin with this disorder and she was more serious than your daughter however, as she got older and decided that she didn't want to take her meds any longer she began to have several problems. Although you daughter may only have a mild case she would have to be producing less, if any cortisone. I'm not sure if you know but when someone is in stress, i.e. fever, injury, surgery then their body produces more cortise to help the body heal. In the case of children with CAH this does not happen and we need to increase their dosage of medication during such times. You may have been very lucky up to this point and not have experience much with you daughter to notice her body struggeling to heal or maybe you have and that would explain why she had difficulties getting better. I hope this information is helpful and I woudl definetly recommend having a second opinion. Good Luck