I do agree with everyone here- once again i say this please get as many opinions as you need to feel comfortable. as to the childrens hosp of phila. this is not the same as the childrens hosp of pitt. I understand you did not have a good experience at phila. which is funny because my mother had no idea what was wrong with me when i was diagnosed 20 years ago and after taking me to SEVERAL doctors the childrens hosp of philadelphia was the only one who figured out what was wrong with me. They have saved me not once but TWICE so it really does depend on who you see. good luck