Hello everyone. NIH just gave me this address a few minutes ago. I am so grateful for this site. My son (8-21-95) was diagnosed in late February with CAH. I don't know if it is the salt-wasting one or not.I noticed pubic hair and brought him to the pediatrician. We also have a pediatric endocrinologist. His progesterone levels were 1,980 on July 2. In fact, all his labs are way off again. We will be redoing them Aug 2. My son wants to know why they didn't save the last blood they "took" so they wouldn't need anymore more from him. I am in the process of enrolling him in NIH's experimental study. He will be four in Aug and is 44" tall and weighs 50 lbs. His little sister will be tested at her 9 mos well-baby check. Oh, my son is on Cortef: 5 mg in AM and at 2pm and 2.5mg at bedtime. He is extrremely active. I'm not exactly sure if the hyperactivity is due to the meds or the disease. He has grown an inch a month and gained at least a pound a month since he was diagnosed. We are very concerned about him not growing to his potential height. The pubic hair is still there and mild facial acne, but no BO or axillary hair. His bone age is 7 yrs old. Thanks for reading this and I look forward to learning from all of you. Selena