He is so out of control. His 17-hydroxyprogesterone is 2,500, his testosterone is 20. Thank God his renin is normal. I'm am so glad we are going to NIH for the study. Our Dr's are at a loss for what to do for him. He was first diagnosed in late February and his labs are higher now that they were then, before he started the meds. We are going to continue his present dose of Cortef (5mg every am and 2pm and 2.5 mg every night) until the endo is available on Tuesday and we talk to her. My heart is breaking for my son. He hasso much going on inside of him. I wish there was something I could do for him. Thanks for listening to me ramble. Selena