Ditto to Michele's message about MAGIC and Cathy Kusch. I was at the convention providing "emotional support" when Michele's son got sick. Michele and her husband handled it so well! Cathy is very accessible and never acts like I'm bothering her with all my questions. I feel very fortunate that I found MAGIC, It is like another family full of people that know exactly what I'm going through. I highly recommend anyone dealing with CAH to contact MAGIC.