I wanted to respond so you know that others are reading your message and care,, but as the other respondent mentioned, many of the people who visit this board frequently are parents of younger children. (I have a 1 year old boy). I am sure you haven't heard back yet because many people don't know what to say that could help Cris. I don't have much to add to the other message you recieved - a good endocrinologist is critical and the links on the side of this page are very helpful. In previous posts people have referred to a message board that is for adults (although it may have been for people with late onset CAH. I don't know how different that is from other CAH). If someone reads this and knows about the other message board perhaps they could give you the address. GOOD LUCK. You are a good friend to her.