I debated as to whether or not I would add my 2 cents, but let me just say this. You waited only ONE day for a response! You have to keep in mind that most folks here are adults with families and jobs who may not check this board everyday. And not every situation is one that each of us has background. I read your message, but had no input or advice. I have a young son and know very little of issues for girls first hand. If you are patient, you may find an adult female who stops in who may be helpful. However, these are sensitive issues. If you want people who will divulge their personal lives in these matters, a certain amount of trust has to be established. Attacking people is not the way to get that. I understand your eagerness to get information. Most of us here had children born with this disorder and we have had to search high and low for information and a community to turn to. We could not find materials to read that weren't full of medical jargon. Your friend has waited this long for help..... Take a step back and I am sure you will find the answers for your friend. Or direct your friend here to ask questions first-hand.