Here is a web site that has international support groups but it does not have one for China. You could email them and ask if they know of any support groups for China. http://www.medhelp.org/nadf/ The most important thing about CAH is to have the emergency injection kit with you at all time. And if she has a fever or vomiting not to just double the cortef but give the injection of cortef. I know sadly because my 2 and 1/2 year daughter died because I should have given more cortef by injection and not orally. You can not over dose on cortef if she is sick and without more --- she can die. I love my daughter very much and you did your 22 day old son. I miss her every day. I hope that nothing happens to your new baby girl. If you ever need anything. Let me know. I can mail you the injection kit. And the blood tests are very important. It is hard to take blood from a baby but it is necessary. I had to get chem 6(measure the salt lost), OH-17 (hormones) and plasma renin (for the blood pressure) - every month the first year. Then at least every 3 months after age 2 - more often if the tests are not right and the medication is adjusted as she grows. Babies grow very fast and they need more medication as they grow. And give the cortef every 8 hours... 7 am; 3pm; and 11pm... in her sleep in okay. I give the liquid cortef with a dropper... and just squirit in the mouth. preston@kreative.net my address: Roberta Preston 635 N. Ripley Street Alexandria, Virgina USA