hi jennie i was so happy to see a grown child with cah to 16 without any major problems. i would like to know if you have treated your daughter any special way. did you just go along with the subcribed med's and that it? did you double up on her med's upon high fever, vomitting etc.? i would so much like to ask you if your child has any problems with her appearance or personally because she has a condition. please respond you input is highly appreciated. my daughter is currently four. she is a beautiful little girl and i worry how she will accept herself with a conditon.