Chris, We have had experience with several endos, unfortunately we have moved 2 or 3 times since my children were 1, and we have been in search of a good doctor. The doctor who diagnosed our children and treated them was the best doctor we have had so far. He suggested a bone age every year, starting at age 1, and in times of illness, he would double their Cortef dose. He also wanted labwork done every 3 months and he was very thorough about charting their growth. We are very frustrated because there seem to be several different schools of thought when it comes to treating CAH. We have seen doctors who would send us to the emergency room for a hangnail, some who triple the doses in times of illness. Some who want labs every 6 months, and some who feel x-rays are not important unless a pattern of accelerated growth is exhibited. Common sense seems to tell my husband and myself, that when our children are young and growing in spurts, it would seem that one would want to be more vigilant about labs and x-rays because thier bodies are constantly growing and changing. We were told that when our kids reached pubertyor their adult heights, it would be then that we could slack off a little on the testing and monitoring. Our original doctor never mentioned anything about x-rays being too variable to read under the age of 3, and our kids had their first wrist x-ray at age 1. They have never had, nor has anyone ever suggested a full body x-ray. When my kids were 1, and had their first wrist x-ray, the results were good. They were in the 9-12 month old range. It was with this doctor that my kids had labs done every 3 months, and their levels were always well controlled. Shortly after my oldest son was a year old, we moved. Since then, we have been with doctors who don't believe in x-rays every year because they don't want to expose the kids to excessive radiation. These doctors also do labs every 6 months. I can tell you that since we have been with these new doctors, my children have had above normal levels on their labs, and their meds are always being increased, and with no x-rays since the age of 1, I have just discovered that my 3 1/2 year old son has the bone age of a 5 year old. This was enough to convince me that we would prefer more frequent monitoring and yearly x-rays. Since growth is such a major component of this disorder, it seems only natural to want to monitor it and treat it more frequently. We are now on a quest to find a doctor in our area that takes more personal interest in our children and their growth. I don't want to feel like I shortchanged my kids by not getting them the best care I could. If my son grows up with some issues about his height or bone age, or if he develops precocious puberty, I will feel like I failed him by not having done what was in his best interest. I was so tired of having to fight with the doctors about what I wanted for my children. We have been butting heads over this x-ray issue for 2 years. They have been trying to avoid it by not addressing it, since I always asked questions about the x-rays and how effective they were. I had finally realized that I am the one responsible for my children's health, and I pay the bills, and I had my pediatrician write the orders for the x-ray. Sorry this is so long, but this is still an open wound for me, since I am now looking for a new doctor. I would rather subscribe to the every year x-ray, every 3 month labs, just to be on the safe side. I would get a second opinion about the x-rays from a different doctor. It is hard to know what is right, when no one really knows which way is better. We are opting for the conservative, common sense approach. Good Luck.