Hello Mistie as a matter of fact I am in the middle of trying to get SSI for my three sons. I was denied two times . Now I have a lawyer and we are APPEALING the judgement. The reason I think this is so important, because if something were ever to happen and we lost our income I not would be able to get my children medication as we know this is a life or death situation. We will fight this. I think YOU SHOULD APPLY.If we all did, maybe the government would look into this deficiency and know that it is as life threating as some other cases that have been approved. If anyone have any information on how to get SSI please reply it could help a lot of CAH cases.