Martha, I'm with you on that. I would venture to guess that because CAH is such a relatively uncommon condition, not a lot of research dollars are invested. Likewise, drug companies aren't going to invest a lot because the almighty dollar makes the world go around and they would'nt see a return on their investment. But, from what I've read about genetic research, I'll bet there would be hope in gene research/splicing .......if, someone would just invest in this area.