Contact the Magic Foundation; they have a network of parents, willing and able to talk to others. Their website is at the left; their 800 number is listed on another post by Andrea H; call them, and they will send you information. We have a 10 month old son, salt losing. Feel free to email us. We currently live in Indiana, after our son was diagnosed in Texas. Also, check the guestbook; you can sign in, or just look at it, and contact some of the parents or patients that signed in. That's how we met some valuable, wonderful CAH parents. Good luck