Maggy, welcome to the board! You've found a great place to get information. Danny set up a lot of great links on the left side of the main board. Keep checking back here & read the posts. Most of us have gone through what you are going through right now. Most important things are: 1. to find a good pediatric Endocrinologist (one who knows about CAH & is willing to spend time explaining & discussing things with you) 2. have your grandson's blood levels checked regularly. 3. give him his medications religiously...don't miss doses. With proper care and well controlled medication levels your grandson should grow & mature normally.