I have this book. I think it's great. It is the one I copy to give to my daughter's school. I am new here. I am Eileen and my daughter Amanda is 8 years old, with salt wasting 21 hydroxylase deficiency. Also, about the support group in MN I did contact them years ago, about 6 or 7. She had some people in it, but when I tried to contact them, they didn't respond. The Magic Foundation is still the best place to be. I don't know if any of you had seent he 20/20 episode that aired 3 years ago. Amanda and I were on that episode. I have fell out of touch with alot of friends, and would like to get back into my networking. Amanda is now 8. She is on 7.5mg Cortef x3 and .35mg. Florinef. Coming along ok, although I think we might be starting Lupron in the next month or two, so I have to find some info on that. Thanks for listening!! Eileen