Sounds like CAH to me. Your daughter's adrenal glands are not functioning properly because of a defective gene which causes the enzyme deficiency. As a result, the adrenals end up producing too much of the wrong"stuff" {androgens} which causes the rapid bone growth and the early signs of puberty. By supressing the adrenal glands {putting them to sleep}, the excess production of androgens stops. Giving the hydrocortisone daily is replacement therapy. You are giving the body what it should, but CANNOT make on its own. When your child is sick {fever, vomiting} or seriously physically injured {ie broken bones}, the body cannot produce the extra hydrocortisone needed to deal with the stress. That is when you MUST give extra hydro to avoid a crisis. It can be overwhelming but trust me you get used to it all and so do your friends! I encourage you to get your daughter a medic alert bracelet stating that she is steroid dependent, and always hve her medecine with you or the parent of the child she is playing with. Meds should also be at school with the school nurse with instructions from your endo. If your daughter had been diagnosed earlier she may not have had as much bone age advancement. However her need for meds and stress doses would still have been necessary. Check out some of the information on the left and you'll learn lots about CAH. I know it is all so mmuch to handle right now, but it does get easier. I have three children, two of whom have CAH. We have our routine and for the most part, things run pretty well. Make sure you have a good line of communication with your docs. It gives you great peace of mind. Good luck ! concerned mom