All the advice you've gotten sounds good. The only thing I have to add is this, even though it gets better and you adjust to the situation please always remember there will come a day when your child will try to quit taking the medication. PLEASE no matter what age that might be, do what ever it takes to get it her to take it. My son was born with Salt Wasting Type. After he turned of age he quit taking his meds. and when I tried talking to him about it he would say "I take it when I remember". Then it got to the point where he would tell me he was taking it, but I knew better because he had lost alot of weight, I'd say something to him and his reply would be "Ok Mom, gotta go see ya later". The last time I heard those words were Mar. 21,1999, I watched him pull out of the driveway and the next Thursday I get a call from his dad that he is in the hospital and it was touch and go. He came down with pneumonia and due to not taking his meds. right he went into seizures that damaged his brain, the only thing that was keeping him alive was the machines and meds they were giving him to keep his BP up, and those only worked for a short time. We made the choice of removing life support because they said the brain damage was critical. He was 21 years old, had just turned 21 that feb. So please if your child decides to stop the meds. do whatever it takes, I wish I would have, but I never dreamed after all these years that I would lose him due to CAH.