our precious angels are truly gifts from god and should not be treated like they have this terrible disease and made to feel like they are "sick children". our entire family treats our 6 year old grandson "NORMAL" we are precautious, of course, and give him his required 2 doses of medicines daily, but we don't make a big deal out of it. he has his meds when we are all having our vitamins, etc and it's a part of his daily routine. he wears his medical alert bracelet and lives a happy, very normal life of a 1st grader. we cannot put a stigma on these children with cah - they have to feel as though they are just like all other children and they are..we're just orally giving their bodies what they cannot produce. get their meds in them, take them for checkups and ENJOY them!!!!