BETH, I ALSO HAVE A NINE YEAR OLD DAUGHTER WHO WAS DIAGNOSED WITH CAH. SHE WAS DIAGNOSED AT ONE AND A HALF. SHE WAS BORN WITH AN ENLARGED CLITORIS AND IS NON SALT WASTING ALSO. SHE HAS AN ADVANCED BONE AGE OF 12 AT 6 YEARS OLD. SHE HAS BEEN TAKING LUPRON INJECTIONS FOR ABOUT 4 OR 5 YEARS NOW. I DID NOT FULLY UNDERSTAND CAH UNTIL I LOOKED IT UP ON THE INTERNET. I STILL HAVE A LOT OF QUESTIONS TO ASK THE SPECIALIST WHEN WE SEE HIM NEXT WEEK. I ALSO HAVE A 6 YEAR OLD SON WHO HAS NOT BEEN TESTED. AFTER READING A FEW THINGS ABOUT CAH SYMPTOMS I HAVE A FEELING THAT HE ALSO MIGHT HAVE IT. IN MY AREA WHEN A CHILD IS BORN THEY DO NOT TEST FOR CAH. AS A MATTER OF FACT I KNOW OF ONLY TWO CASES OF CAH IN THIS AREA. WILL BE WAITING FOR A RESPONSE. THANK GOD I FOUND THIS MESSAGE BOARD.