In reading this board, the late onset CAH board, and the Addison's board ... I'm starting to wonder some things. Our children's endos determine their med doses based on how the CAH tests come out. Then when we encounter other problems, such as overweight, underweight, heachaches, irritability, & other problems ... we hear "it's the meds & CAH that do that OR it's not the meds or CAH that do that." It makes me wonder when the adult CAH people & Addison's people frequently enough develop other conditions such as hypothyroidism & hyperthyroidism (thyroid conditions affecting weight, brittle hair or hair loss), osteoporosis, androgenetic alopecia (too high androgen production - thin or falling out hair), and other conditions ... and their endos tell them that these conditions often accompany adrenal insufficient conditions! Because here we are determining meds based on one testing every 3 months or so, when there may be other things going on that the endos aren't looking for (yet) since all is assumed just from how the tests come out. Do you think that maybe we should compile a list of these other conditions & symptoms that adrenal insufficient people seem to discover later in life ... so that we can be on watch for these? Because if the endo insists a child's weight problem isn't due to the meds, then maybe we could direct the endo to test for a thyroid problem, as thyroid problems frequently accompany CAH.