5 month old twin with CAH needs advice
1/3/100 10:25 PM
Our twin son was diagnosised with CAH (salt wasting) at three weeks. We had no idea that he had CAH until he became lethargic and began vomitting bile at 13 days old. He was rushed to the emergency room with a potassium level of ten. The doctors said he was a fighter - there were no adverse effects and he started to improve once treatment for CAH began. The tests took almost two weeks for a confirmation of CAH. It was the longest and most difficult two weeks of our life. Giving our son the necessary meds proved difficult in the beginning, but it has gotten easier with time. The most trying was adding salt to his formula for the first few weeks - he did not approve of the addition. However, that too has improved. So far so good, his weight and height are terrific and he is reaching all the milestones along with his brother. However, I was curious of any much needed advice as to what the future will hold for him. I guess I would like reassurance that he will have a normal and healthy life!
Kimberly
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