This is a very hard story to tell. I always said if I were to find out someone else went through what my family went through I would feel better. My daughter was born two and a half years ago with ambiguous genitalia (meaning that at birth the doctors could not tell by her genitals if she were male or female.) My OB said she thought my baby was a girl with an enlarged clitoris but decided to not give the baby a sex until she had another doctor look at her. With that, came a team of doctors in my birthing room that surrounded my daughter and began to talk amongst themselves. I began to panick. I was then told by this group that I would not know the sex of my baby for a week. There were several tests the baby had to endure to find out the sex. To me she looked like a girl, and my gut feel was that she was a girl. She was given an ultrasound, several hormone tests, and the remaining and final determining test, was the chromosone test. At this point I was not told of the possibilities of this child having a disease. I was introduced to the endocrologist but at that time I thought it was a genital expert. I had no idea. To make a very long story short. I had what turned out to be an arrogant endocrologist who at the time was teaching med. students on toe, came in like a tyrant, ignorned me, stuck his finger up my poor baby's but pushed on her stomach and said, "I believe this is a boy because I do not feel a uterus. He has no testes and will be impotent the rest of his life. Measured her enlarged clitoris and said, "We will have to give hormones to grow an adequete penis and then as an adult, we can do more surgery." I said,"Excuse me but what if we get the chromosome tests back Friday and I have a girl?" He replied, "I've never been wrong. Needless to say I just couldn't except this in my mind, but was always taught that doctors know everything. That was a day after my baby was born. So he assured me everything was going to be fine to name our baby. It was just a hormone imbalance that caused this. As the week went on they did the tests that were required. The ultrasound showed she had a uterus, overies, the whole nine yards. I was already sent home with a boy. As her records showed, they were looking for CAH because of her ambiguious genitalia, and never mentioned it to me. They sent home a baby that clearly showed was dehydrated the day they sent me home.(That was a Monday) Later that week the endocrologist that said he was never wrong called me to let me know that they had found overies, uterus ect. He apologized and said not to call my baby a boy just yet. He would meet with me that Friday to let me know the results of the chromosomes. That was three days after I was home and announced that I had a boy. I thought someone had stabbed my head with a knife. Now he still did not tell me my child could have this disease. I wound up taking my baby to her pediatrician because I knew something was just not right, and indeed she was hours away from death. Needless to say I went to a whole different hospital whith a whole different endo. that had told me, yes indeed you do have a girl and she has a disease called CAH. I just wanted to share my experience in hopes to help someone else and help me. After I was told that my son was in fact a girl with an enlarged clitoris, I felt like I lost a twin. I had to mourn the child I "lost". Then I had to explain my situation to a laughing woman when I tried to change her social security card. This is not a laughing matter. I had a pharmasist insist that I had a boy on my insurance card, so he would not give me my daughters medicine. I can look past that and thank god for blessing me with the doctors that saved her life. I could have been mourning a real dealth. If anyone has had such a thing happen to their child let me know. Thank You for listenting. P.S. That endocrologist no longer works in that hospital or in this state.