kimberly, I have twins with CAH....if you would like to email me I would be happpy to answer or at least try to answer some of your questions. I can understand the shock and disbelief associated with getting this diagnosis. I think it took me at least a year to get a grip...I also learned about my children's condition approx. 3 wks after their births...a total shock and we nearly lost them too. Sounds like one, not both of your twins have CAH...Email me if you want to chat over things....Take care and just love, love,love those babes...they are truly gifts.