Wow, I give you all alot of credit for being able to articulate your stories so clearly and factually when it is all so recent. My daughter, our first child, was born 8 years ago and akthough I can still remember everything in great detail, i would have a hard time expressing it without a lot of anger and sarcasim. When I think back about my own experiences and then read yours I am filled with rage at the ignorance and insesitivity of so many medical "professionals". I am surprised that there are not more tragedies with the way so many of these cases are handled. I my husband and I had listened to the idiot pediatrician who cared for our daughter when she was first born, I am certain she would not be alive today. Some docs have such a complasent attitude when it comes to CAH. or perhaps it is truly ignorance. All I know is that as parents of children with this disorder, we are our young childrens'strongest advocates. To insure the absolute best care for our children, we must be very educated about CAH and be willing to politely and respectfully challenge the docs when our gut feeling is something other than what they suggest. We have found that mom's intinct along with lots of reading has saved our daughter and son several times. Don't be shy, don't be intimidated! You have the right and responsibility to talk honestly and openly with the medical professionals about your questions and concerns. We can earn their respect and they ours and only then do you have a great team with the child's best interest at heart. I feel for all of you who have lived thru the hell of those early months and especially for those with tragic endings. I remember. I wish I jad had this board 8 years ago. Best of health to all of you and your families/