I'm sorry to hear about your loss of your brother. How sad. As previous messages said, both parents have to be carriers (or have CAH) for the child to get it. I'll pass along info straight from the articles we received when my son was diagnosed. About 1 in 50 people carry a CAH gene. Unless both partners are carriers there is no possibility of their child having CAH. When both parents carry the gene there is a 25% chance, with each pregnancy, of having a child with CAH. There is a 50% chance that the child will be a carrier, and a 25% chance the child will not be a carrier. If one parent has CAH all their children will be carriers. . . . So it really isn't one in a million. And as everyone from this message board can tell you - it does happen. There are different forms of CAH - salt wasting, non-salt wasting, late onset. The salt wasting is particularly dangerous for infants because they can go into a crisis and die. If there is a possibility that you will have more children, please get the genetic test to find out if you are a carrier. If you brother had the same parents as you, you have a 50% chance of being a carrier and a 1 in 50 chance of meeting another carrier. Many, many states do not test for CAH at birth and your child could very easily die before you find out about CAH. Boys (if salt wasting) are especially at risk because there is often no outward sign of a problem. Thank god my state tests, my son had no signs of any problems when the test came back. When he was 7 days old we got a call from the dr. who said "get him to Children's Hospital E.R. immediately". He was having serious heart problems and probably would have died in another day or two. I hope this was of some help.