My main concerns re the study included the travel expenses and the poking and proding done to my son. I have spoken with several people conducting the research and this is what I found out... Yes there will be many tests. It will be 2 days of testing. A lot of it will be blood draws. To prevent the constant sticking of needles the child would have a heplock where they can take all blood draws from. This means potentially just one needle stick. The other tests are MRI, X ray, sonogram, height checks, weight checks, blood pressure etc..... these are all non-invasive. As for the travel... we can not afford to pay for that. NIH will be covering all airfare after the first trip. They never pay the first visit travel. All future visits the airfare will be covered. You just have to answer a few questions from the financial person. I think she may have been a social worker too. They have a shuttle that goes to 2 of the local airports 4 times a day except for Saturdays. They allow $8.00 / day for food for the parent. Not much I know but helpful. And they have long distance phone provided to keep relatives up to date etc... Potty training isnt as big a deal as the age. Need to be 3 to do the study. Brayden will be 3 in 6 weeks. He is not potty trained. Eventually when he is they will collect the 24 urine. Something to think about for those thinking of participating in this study.....Your child will either have the traditional treatment which works or the experimental treatment which has been shown -SO FAR- to work better. You will know all the time what is going on. You will have the best Dr's caring for your child and very closely monitering him/her. If nothing else, your child will be helping all the future children born with CAH to have the optimal level of care. That is powerful. Susan