our grandson is 6 now and has always done everything every little boy does. he even broke his arm last summer planning soccer. that didn't slow him down one bit. he just chose a bright green cast and kept playing all his sports. our "angels" are gifts from god, are "normal" and have to be treated as such. we don't even emphasize too dramactically "it's time to take your medicine" he knows that he has and always will take his "medicine" in the am and in the p.m. that is so routine to him now, it's almost like brushing his teeth to him. we are all lucky that our "angels" don't have a disease much much more serious than cah. cah is serious, but luckily controllable and a "problem" that can result with a normal life and normal activities for all these children. let them be children, live each day to the fullest and love love love them.