My story is similar and I realize how much pain is still with me now that I read your story. A time that was supposed to be so wonderful was torn apart with unanswered questions from the doctors. People don't understand problems involving the sex of a child (I didn't either)so I was very uncomfortable telling anyone that I had given birth. They sent us home after 4days and said that she didn't have CAH and that we would have to go to have tests done to see if she had ovaries. My daughter constantly threw up and I was told it was because she was a new born. When we went to have the tests done at the hospital, they did the test wrong and shot the dye all through her system so she had to stay in hospital. THANK GOODNESS in hindsight. While she was in ICU she went into shock and the endo who was called (who is now her doctor)recognized that she had CAH and immediately gave her the meds required. He could not beleive that she was sent home and says that she should have immediately been taken to the childrens hospital. When I met him my life changed. He told me that I have a beautiful little girl who will live a normal life but will have to take medication for the rest of her life. I am still very angry with the paediatrician that let her go home because if the circumstances didn't happen the way that they did my daughter would have died! I have informed the hospital that I will speak with any new families of children with CAH to hopefully help alleviate some of the hardships that we are all faced with. It's time CAH was recongnized. Thanks for letting me share my story and for sharing yours with us.