My story is also very similar!!!!!!!! My daughter was born in 1985 and when I questioned the doctor about my daughter's enlarged clitoris, I was simply told it was swollen because of all the hormones produced in my body during delivery. ( It was a completely natural childbirth, no drugs at all.... ok I confess to taking a tylenol afterwards.) Anyway, when she was 6 weeks old, I questioned again the public health nurse and doctor why my daughter would always cry and wake when she wet. I also could not determine the opening for the vagina. Speaking bluntly, her parts just didn't look normal and they treated me like an absolute weirdo for even asking. I was intimidated by the medical professionals but in my heart I knew something was truly wrong. I took my daughter to several pediaticians and I was even told at one point that I was an over-reactive single working mother and was told to get a hobby (like I had time). When my daughter was 2 1/2, yet another pediatrician examined her and put her in the hospital for a week for tests. No tests for CAH were done and they determined she was normal. At this point, no endo had ever been consulted and I was not even aware of what endocrinology was. Needless to say, when I was told that my 2 1/2 year old who was developing pubic hairs was normal, I didn't believe them. If you can't go over the mountain... you go around it .... so i took a different approach. I made an appointment with my gynocologist. I was told he would not see young children, but I brought my daughter with me anyway. When gyn came into the examining room, he wanted my daughter out of the room. At that point, I informed him that the reason I was there was because of my daughter. I must admit to pleading at that point. While he would not examine her, he did bring us into his office and asked my numerous questions. After he placed a few phone calls, I was told to told to show up the next day at the emergency room of the local hospital and ask for a particular endocrinologist. Within a month, the appropriate tests were completed. When the results came in, my daughter was immediately put on cortef and referred to a pediatric endo in a nearby larger city. What a turn around... before we could barely get anyone to listen to us and all of a sudden we were told to be be at the ped endos the next office day and to order her a medic alert bracelet. The endo said "the mother was certainly right in this case." My daughter will turn 15 this month. I hate to think of what her life would be like if I didn't persist.